Looking for support for your UTI, chronic UTI campaigns in your part of the world and help with pelvic pain and your mental health?
Support groups
Are you in treatment for Chronic UTI? Or are you wondering if your IC diagnosis could be wrong as you have a history of UTIs and want a safe space to find out more? Find a supportive environment for you to understand your infections, seek and discuss treatment and be in contact with fellow sufferers across the world.
Whilst the following Facebook groups can’t give medical advice, they provide a safe space for you to talk to others about how you’re doing and help stop you feeling isolated in all that you are going through.
Men and Women’s Chronic UTI Support Group
Women’s Chronic UTI Support Group
Support Group for UTIs in Children
Embedded/Chronic UTI Support Group
For those based in Australia or New Zealand search for the Chronic and Recurrent UTI Chat Group (Australia and New Zealand).
Global campaign and information groups
The Chronic Urinary Tract Infection Campaign
If you would like to speak to someone, Bladder Health UK run an advice line as well as support forums. A specialist nurse is also available to speak to once a week. Call 0121 702 0820.
Pelvic and vulval pain support groups
General pelvic pain both male and female
The Pelvic Pain Support Network – UK
The Pelvic Pain Foundation – Australia
The International Pelvic Pain Society – US
Vulval and vaginal issues
The Vulval Pain Society – UK
The Gynaecological Awareness Information Network – Australia
The Vulvar Pain Foundation – US
The National Vulvodynia Association – US
Mental health support
These free helplines are there to help when you’re feeling down or desperate. Unless it says otherwise, they’re open 24 hours a day, every day.
Samaritans
Call 116 123
Email jo@samaritans.org
For men
Campaign Against Living Miserably (CALM)
Call 0800 58 58 58
5pm to midnight every day
For people under 35
Papyrus
Call 0800 068 4141
Monday to Friday 10am to 10pm
Weekends 2pm to 10pm
Bank holidays 2pm to 5pm
Text 07786 209697
Email pat@papyrus-uk.org
For children and young people under 19
Childline
Call 0800 1111 – the number won’t show up on your phone bill
For older people
The Silver Line
Call 0800 4 70 80 90
United States
National Suicide Prevention Lifeline
Call 1-800-273-TALK (8255) or contact the Crisis Text Line by texting TALK to 741741.
Australia
Lifeline Australia
Call 13 11 14